Caregiver Support - Mental Health

Are you taking care of someone in your family who is sick, disabled, elderly or frail? We know the demand of doing so can be high, and the mental, emotional, and physical strength necessary to do so can at times feel extreme or overwhelming. Often, caregivers are taking care of others while also trying to balance their own work, social, and family life. This can lead to mental health issues such as anxiety and depression. As well, accepting a shift in caregiver roles from parents to children can be difficult and overwhelming. Caregiver support can help alleviate some of the stress that can be involved in being responsible for another person’s care, by sharing the responsibility of caregiving, and also offering support to the caregiver to help balance the demands and challenges they may face. Are you currently caring for a friend or family member, but finding it hard to manage your own mental health while doing so? Anyone, at any time, can face mental health issues. If you, or a friend or loved one need empathetic and understanding sources of support and information to help manage your mental health, Kinjunxion is here to help. There are many options for caregiver relief including assistance with meal preparation, transportation, personal care and household chores. In order to take care of someone else, you also need to take care of yourself. If you are looking for caregiver relief options in your neighbourhood, we have the resources you need.

You are not alone. Connect with others who may be going through the same thing, find professional help and resources near you. The Kinjunxion community is here to help.

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Family caregiving in mental illness

"This is the most comprehensive book to-date about the role that families play in caring for adults with mental illness. Unique to this volume is an examination of caregiving roles from an historical perspective as well as from the perspective of various caregiving relationships--parents, adult children, and siblings. Of special importance is Dr. Lefley's delineation of the nature of caregiving throughout the life cycle of the family." Agnes B. Hatfield, Ph.D., University of Maryland at College Park "I find Harriet Lefley's new book Family Caregiving in Mental Illness to be extremely thoughtful and comprehensive. It is all here--family theories and research, caregiving in the context of changes in the family life cycle, coping strategies, cross-cultural issues, advocacy, patient rights, and mental health policy. Dr. Lefley is the expert of experts when it comes to family caregiving in serious mental illness. The book is very readable and accessible to family members, social workers, and policymakers. It represents another big step in Dr. Lefley's courageous effort to bring family issues to public attention." --Richard Tessler, Ph.D. University of Massachusetts Deinstitutionalization suddenly catapults family members into being the primary caregivers for functionally impaired adults who are diagnosed with mental illness. This role as caregiver is one that family members are untrained and unprepared for. In Family Caregiving in Mental Illness, author Harriet Lefley explores the experiences of those giving care for adults with mental illness. She thoughtfully examines the unique characteristics and conceptual models related to mental illness and then surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness. Family burden, including social stigma; treatment barriers; iatrogenic stress; and the relationship between the patient and caregiver are appraised while the influence on other family members is highlighted. The stages of familial response, specific types of coping strategies, and professional and nonclinical services for families are reviewed, along with positive affects on the family's welfare. Finally, cultural factors affecting family caregiving are discussed in the international context and in terms of ethnic differences within the United States. Also considered are the impact of advocacy movements on caregivers, the legal and ethical barriers to care, alternative models to family caregiving, and the maintenance and growth of consumer-run services. All professionals working with persons with mental illness as well as researchers and students in this area will find Family Caregiving in Mental Illness illuminating and valuable.

Supporting the Caregiver in Dementia

A Guide for Health Care Professionals

Dementia is one of the greatest challenges facing seniors and their caregivers around the globe. Developed by experts in both research and practice, this guide for mental health clinicians explores the experience of caregiving in dementia, discussing the latest research developments and sharing clinical pearls of wisdom that can easily be translated to daily practice. The contributors explore the history of caregiving and then examine the current demographics of caregivers for persons with dementia. They discuss who provides care, the settings in which it is delivered, and the rewards and burdens of caregiving. They place special emphasis on understanding the psychological needs of both the person with dementia and the caregiver, as well as interpersonal bonds, spiritual dimensions, and reactions to grief and loss. Using a multidisciplinary approach to treatment for caregivers, this book addresses the role of pharmacotherapy, individual and family interventions, and social supports. Finally, the authors reflect on societal issues such as health care policies, ethnic elders, and ethics. This volume offers health professionals insights into the daily lives of caregivers, along with tools to provide their patients with the support they need.

Discharge Planning Guide

Tools for Compliance

Book discusses federal regulations surrounding discharge planning.

The Addiction Solution

Treating Our Dependence on Opioids and Other Drugs

A groundbreaking, “timely and well-written” (Booklist, starred review) guide to addiction from a psychiatrist and public health doctor, offering practical, proven solutions for individuals, families, and communities dealing with substance use and abuse. Written with warmth, accessibility, and vast authority, The Addiction Solution is a practical guide through the world of drug use and abuse and addiction treatment. Here, Lloyd I. Sederer, MD, brings together scientific and clinical knowledge, policy suggestions, and case studies to describe our current drug crisis and establish a clear path forward to recovery and health. In a time when so many people are affected by the addiction epidemic, when 142 people die of overdoses every day in the United States, principally from opioids, Sederer’s decades of wisdom and clinical experience are needed more than ever before. With a timely focus on opioids, Sederer takes us through the proven essentials of addiction treatment and explains why so many of our current policies, like the lingering remnants of the War on Drugs, fail to help drug users, their families, and their wider communities. He identifies a key insight, often overlooked in popular and professional writing about addiction and its treatment: namely, that people who use drugs do so to meet specific needs, and that drugs may be the best solution those people currently have. Writing with generosity and empathy about the many Americans who use illicit and prescribed substances, Sederer lays out specific, evidence-based, researched solutions to the prevention and problems of drug use, including exercise, medications, therapy, recovery programs, and community services. “Comprehensive…well-informed and accessible” (Kirkus Reviews), The Addiction Solution provides invaluable help, comfort, and hope.

When Someone You Love Has a Mental Illness

A Handbook for Family, Friends, and Caregivers

An essential resource--featuring 50 proven Quick Reference guides--for the millions of parents, siblings, and friends of people with mental illness, as well as professionals in the field.

The Complete Caregiver Support Guide

A Reproducible Workbook for Groups and Individuals

Family members, and sometimes close friends, are often called upon to act as caregivers to ill or aged people they care about or for whom they are responsible. Although there are many rewarding outcomes of the time spent between the courageous and dedicated caregiver and the care-receiver*, the caregivers are usually unprepared, untrained and unsupported. The caregivers are also often isolated. These factors can put a huge amount of stress on non-professional or family caregivers.Attending a caregiver support group focusing on specific issues is of great benefit for caregivers. Such groups can include those facilitated by professionals such as social workers, counselors and group facilitators, and those facilitated by lay persons, often themselves caregivers. The intention of Caregiver Support is to provide content for support group facilitators and caregivers that touches on crucial topics. The reproducible handouts and worksheets are designed to provide insights, encourage problem-solving and develop the ability for caregivers to ask for the help they need to stay physically and emotionally healthy, allowing them to continue to be there for their care-receiver. While the book has an emphasis on caregiver support groups, the value of the handouts is the same for both groups and individuals. The individual seeking help in dealing with the stresses of their role as caregiver will find sections or individual handouts that speak to their most pressing needs. After working through them, individuals can discuss their insights with someone they can trust to give useful feedback, as well as family members who are willing to help in ways that will contribute to the caregiver's continued wellbeing.

Families Caring for an Aging America

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation’s family caregivers provide the lion’s share of long-term care for our older adult population. They are also central to older adults’ access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Family caregiving and mental illness

predictors of distress and caregiver service priorities

Depression and Your Child

A Guide for Parents and Caregivers

Seeing your child suffer in any way is a harrowing experience for any parent. Mental illness in children can be particularly draining due to the mystery surrounding it, and the issue of diagnosis at such a tender age. Depression and Your Child gives parents and caregivers a uniquely textured understanding of pediatric depression, its causes, its symptoms, and its treatments. Serani weaves her own personal experiences of being a depressed child along with her clinical experiences as a psychologist treating depressed children. Current research, treatments and trends are presented in easy to understand language and tough subjects like self-harm, suicide and recovery plans are addressed with supportive direction. Parents will learn tips on how to discipline a depressed child, what to expect from traditional treatments like psychotherapy and medication, how to use holistic methods to address depression, how to avoid caregiver burnout, and how to move through the trauma of diagnosis and plan for the future. Real life cases highlight the issues addressed in each chapter and resources and a glossary help to further understanding for those seeking additional information. Parents and caregivers are sure to find here a reassuring approach to childhood depression that highlights the needs of the child even while it emphasizes the need for caregivers to care for themselves and other family members as well.

Cancer Caregivers

Informal caregivers - family members, friends, and other loved ones - are an essential, uncompensated and significantly burdened extension of the healthcare team. Rapid advances in cancer care, including new drugs and immunotherapies and more sophisticated diagnostic tools, have markedly improved the ability to medically extend lives and enhance survival. As patients are living longer, with today's shorter hospital stays and shift towards increased outpatient care, however, the demands placed on all caregivers and their needs have substantially increased. Cancer Caregivers reveals the field of Psycho-Oncology's exploration of the depth of complexities of caregiving experiences and identifies the vast expanses left to be understood. This text describes the characteristics and experiences of cancer caregivers based on their life stage, relationship to the patient, and ethnic group membership, as well as patients' disease and treatment type. It highlights the significant progress in research focused on the development and dissemination of psychosocial interventions for cancer caregivers, and includes in-depth case studies to illustrate their delivery and application. The text also explores the provision of support to caregivers in the community and the legal and ethical concerns faced by caregivers throughout the caregiving process. Cancer Caregivers offers both fundamental and practical information and is the essential resource for all healthcare professionals who work with patients and families facing cancer.

Letters From Madelyn

Chronicles of a Caregiver

Madelyn Kubin was a 70-year-old Kansas farm wife. She appeared to be fragile because of her thinning white hair, macular degeneration, osteoporosis, congestive heart failure, and severe hearing loss. But when her husband Quentin suffered a debilitating stroke, she was forced to summon all of her physical, emotional, and spiritual strengths in order to care for him at home. Madelyn managed her isolation, loneliness, and stress by going to her computer, disengaging her emotional monitor, and writing letters to her daughter Elaine. Madelyn’s story of faith, courage, and love is told through her unflinchingly honest and surprisingly funny letters written in real time over the course of six-and-a-half years. Although she prayed every day that she would be a willing channel for God’s love and compassion, there were plenty of days she felt like telling God to go find himself another servant. Madelyn wrote unabashedly about her anger, guilt, depression, and grief. When Quentin displayed dementia-related inappropriate sexual behavior, Madelyn eventually learned how to handle it with grace and humor. She was an example of how it is possible, even in the very worst end-of-life situations, to experience mental and spiritual growth.

The Center Cannot Hold

My Journey Through Madness

Elyn R. Saks is an esteemed professor, lawyer, and psychiatrist and is the Orrin B. Evans Professor of Law, Psychology, Psychiatry and the Behavioral Sciences at the University of Southern California Law School, yet she has suffered from schizophrenia for most of her life, and still has ongoing major episodes of the illness. THE CENTER CANNOT HOLD is the eloquent, moving story of Elyn's life, from the first time that she heard voices speaking to her as a young teenager, to attempted suicides in college, through learning to live on her own as an adult in an often terrifying world. Saks discusses frankly the paranoia, the inability to tell imaginary fears from real ones, the voices in her head telling her to kill herself (and to harm others); as well the incredibly difficult obstacles she overcame to become a highly respected professional. This beautifully written memoir is destined to become a classic in its genre. The title is a line from "The Second Coming," a poem by William Butler Yeats, which is alluded to in the book.

ADHD Support

Mental Health Counselors

Single Moms Support

New Moms Support

Family Caregivers Support

Mental Health Advocacy

Mental Health Peer Support

Mental Health Education

Mental Health Recovery

Halton FASD Parent / Caregiver Support Group - No Physical Address

Peer support group for parents and caregivers of children, youths or adults living with Fetal Alcohol Spectrum Disorder.
* welcomes new members from Halton, Hamilton and the surrounding areas

Dundas Community Services - Community Education of Caregivers - Grafton Square

Peer support groups, education and training to assist family members, service providers and caregivers * sessions may include information such as advanced directives and senior safety

Parents for Children's Mental Health - Family Support Group - Burlington Chapter

Peer to peer support group for parents of children and youth with mental health disorders/illnesses
* provide support, education, and empowerment by linking networks of families, communities, agencies and government

St. Joseph's Healthcare Hamilton - Developmental Dual Diagnosis Program - Level 1, Block D, Room D119 (inside Specialty Mental Health Clinic area)

A community-based mental health service that works with other organizations to form a coordinated network of services to meet the mental health needs of adults with intellectual disabilities. Services include assessment, treatment recommendations, and education and support to patients and caregivers.

Joseph Brant Hospital - PACT for Halton - Joseph Brant Community Health Centre

A community outreach program, serving residents of Halton.
* also known as "Hospital without Walls," the program is organized as a mobile interdisciplinary team that provides round-the-clock clinical treatment, rehabilitative, and support services to individuals with a severe and persistent mental illness, in their homes

Services provided by PACT include:
* comprehensive case management with a rehabilitation focus
* crisis assessment and intervention
* symptom assessment and management
* administration and monitoring of medication
* activities of daily living
* social and leisure skills development
* supportive counselling
* education
* consultation
* support to caregivers

Parents for Children's Mental Health - Family Support Group - Oakville Chapter

Provincial, family-led, non-profit organization that provides a voice for families who face the challenges of child and youth mental health issues * provide support, education, and empowerment by linking networks of families, communities, agencies and government


Services include:
  • peer to peer assistance and support
  • link families to important networks within their communities
  • help families access important resources

Parkinson Canada - Hamilton Support Group - Hamilton East

Provides mutual support and education on how to live well to individuals living with Parkinson's and their care partners

Joseph Brant Hospital - Community Mental Health Outpatient Services - Burlington - Joseph Brant Community Health Centre (Brant Centre)

Community Mental Health provides a continuum of care from assessment or consultation, to specialized treatment supports for clients with complex and serious mental health disorders.

Child and Adolescent Clinic (CAP)
Provides support to children/youth under the age of 18 years.
* Child and Adolescent Psychiatrist works with Social Worker to assess and provide treatment recommendations on complex cases.

Concurrent Disorders Clinic (Addictions & Mental Illness)
Specialized assessments of clients with co-occurring mental health and addictions disorders.
* psychiatrists work with Social Worker to identify clients who would benefit from longer term individual treatment.
* clinic staff also provide "Health & Hope Group," a 10-week psycho-educational support group for people who experience difficulties with both a mental health issue and substance abuse issue.

Early Intervention in Psychosis (Phoenix)
Regional clinical program provides service to clients 14-40 years of age experiencing a first episode of psychosis.
* jointly managed by Joseph Brant Hospital, Oakville Trafalgar Memorial Hospital, North Halton Mental Health Clinic, ADAPT, and the Halton-Peel Schizophrenia Society.
* for more information, see separate record here

General Psychiatrist Consultation Clinic
Assessment, medication review, and treatment recommendations via a "shared care" model with family physicians.
* follow up appointments provided as necessary for more complex cases to ensure the efficacy of medications prescribed and that the recommended treatment plan is working for the client.

Geriatric Psychiatric Consultation Service
Supports clients aged 65 and older who are residents of Burlington, for more details see separate record here

Halton Homes (homelessness service)
Provides clinical support to Halton Homes service which targets mental health clients at risk of being homeless and provides both clinical case management and housing supports.
* Ontario Ministry of Health supportive housing initiative, lead agency is Summit Housing and Outreach Program.
* for more information see separate records here

PACT (Program of Assertive Community Treatment)
Community outreach program of Halton Region, is housed at Joseph Brant serving all Halton residents, see separate record here

PHAST (Prioritizing Health through Acute Stabilization and Treatment)
Access to mental health and addiction services for individuals 16 and older with mental health and/or addiction concerns who have an urgent need for acute stabilization and intervention
* multidisciplinary model, which includes the services of a registered nurse, addictions specialists, social workers, a child and youth intensive worker, a peer support worker, an occupational therapist, a transitional age youth social worker, a case manager and clerical support
* treatment includes stabilization and referral to social service agency partners through a combination of group and one-on-one sessions for individuals and their families

Treatment Services
Available through referral from a physician:
1. Short Term Treatment
Meets the needs of individuals who are experiencing mental health issues such as mood or anxiety disorders.
* assessment, psychiatric evaluation, treatment planning, skill development and coordination of community resources.
* an average of 12 therapy sessions is offered.
* clinicians also offer treatment via several groups, e.g. Cognitive Behavioural Therapy (CBT) for clients with depression or anxiety.

2. Intensive Case Management
Inter-professional team offers comprehensive outreach services to adult clients and their families.
* addresses the multiple needs of clients with predominantly psychotic or severe mood disorders (eg. bipolar) and focuses on the client's goals and effective community reintegration.

3. Medication Clinic
Operates with both RN and Psychiatrist support for the follow up of primarily a chronic population.
* goals are to facilitate the optimal use of psychotropic medications with a view to prevent/reduce hospitalizations and Emergency Department visits, ensure client stability in the community and support clients in maintaining adequate functioning and an enhanced quality of life.

Parkinson Canada - Oakville Support Group

The support group meets for mutual support, as well as to learn more about living with Parkinson's disease * for more information about the group, or to be connected with the current local volunteer contact for the support group, please contact Parkinson Canada office

Parents for Children's Mental Health - Hamilton Chapter

Provides support, education, and empowerment to parents and families of children and youth who face mental health challenges. Local chapter of a provincial, family-led organization.

Alzheimer Society of Brant, Haldimand Norfolk, Hamilton Halton - Halton Office

Provides education, support and resources to persons with Alzheimer's disease and related dementias and to their families
* supports research
* maintains local support groups
* strives to end the personal and social consequences of Alzheimer's disease and related dementias in the regions of Halton and Hamilton

Services include:
* forwarding of applications for the National "Safely Home" program for persons at risk of getting lost
* resource centre, information presentations, support groups and counselling for persons with dementia, spouses, relatives, caregivers, professional groups
* referral to related services including respite care, transportation, alternate housing, long-term care
* diversity outreach to build links with ethnic groups in the community

Brain Tumour Foundation of Canada - Adult Brain Tumour Support Group - Burlington

Help survivors, family and caregivers through their journey with a brain tumour by providing connections with others who have faced life with a brain tumour thereby offering reassurance, reducing feelings of isolation and reinforcing a positive, hopeful attitude, and by sharing practical information to:
* help make informed decisions about brain tumour treatment options
* learn about relevant community resources
* enhance coping skills in order to reduce anxiety, feelings of loss of control and fear of the unknown
* talk to others about changes in family roles and the financial strain that can come as a result of a brain tumour diagnosis