Caregiver Support - Mental Health

Are you taking care of someone in your family who is sick, disabled, elderly or frail? We know the demand of doing so can be high, and the mental, emotional, and physical strength necessary to do so can at times feel extreme or overwhelming. Often, caregivers are taking care of others while also trying to balance their own work, social, and family life. This can lead to mental health issues such as anxiety and depression. As well, accepting a shift in caregiver roles from parents to children can be difficult and overwhelming. Caregiver support can help alleviate some of the stress that can be involved in being responsible for another person’s care, by sharing the responsibility of caregiving, and also offering support to the caregiver to help balance the demands and challenges they may face. Are you currently caring for a friend or family member, but finding it hard to manage your own mental health while doing so? Anyone, at any time, can face mental health issues. If you, or a friend or loved one need empathetic and understanding sources of support and information to help manage your mental health, Kinjunxion is here to help. There are many options for caregiver relief including assistance with meal preparation, transportation, personal care and household chores. In order to take care of someone else, you also need to take care of yourself. If you are looking for caregiver relief options in your neighbourhood, we have the resources you need.

You are not alone. Connect with others who may be going through the same thing, find professional help and resources near you. The Kinjunxion community is here to help.

Resources in ,


Supporting the Caregiver in Dementia

A Guide for Health Care Professionals

Dementia is one of the greatest challenges facing seniors and their caregivers around the globe. Developed by experts in both research and practice, this guide for mental health clinicians explores the experience of caregiving in dementia, discussing the latest research developments and sharing clinical pearls of wisdom that can easily be translated to daily practice. The contributors explore the history of caregiving and then examine the current demographics of caregivers for persons with dementia. They discuss who provides care, the settings in which it is delivered, and the rewards and burdens of caregiving. They place special emphasis on understanding the psychological needs of both the person with dementia and the caregiver, as well as interpersonal bonds, spiritual dimensions, and reactions to grief and loss. Using a multidisciplinary approach to treatment for caregivers, this book addresses the role of pharmacotherapy, individual and family interventions, and social supports. Finally, the authors reflect on societal issues such as health care policies, ethnic elders, and ethics. This volume offers health professionals insights into the daily lives of caregivers, along with tools to provide their patients with the support they need.

Cancer Caregivers

Informal caregivers - family members, friends, and other loved ones - are an essential, uncompensated and significantly burdened extension of the healthcare team. Rapid advances in cancer care, including new drugs and immunotherapies and more sophisticated diagnostic tools, have markedly improved the ability to medically extend lives and enhance survival. As patients are living longer, with today's shorter hospital stays and shift towards increased outpatient care, however, the demands placed on all caregivers and their needs have substantially increased. Cancer Caregivers reveals the field of Psycho-Oncology's exploration of the depth of complexities of caregiving experiences and identifies the vast expanses left to be understood. This text describes the characteristics and experiences of cancer caregivers based on their life stage, relationship to the patient, and ethnic group membership, as well as patients' disease and treatment type. It highlights the significant progress in research focused on the development and dissemination of psychosocial interventions for cancer caregivers, and includes in-depth case studies to illustrate their delivery and application. The text also explores the provision of support to caregivers in the community and the legal and ethical concerns faced by caregivers throughout the caregiving process. Cancer Caregivers offers both fundamental and practical information and is the essential resource for all healthcare professionals who work with patients and families facing cancer.

The Center Cannot Hold

My Journey Through Madness

Elyn R. Saks is an esteemed professor, lawyer, and psychiatrist and is the Orrin B. Evans Professor of Law, Psychology, Psychiatry and the Behavioral Sciences at the University of Southern California Law School, yet she has suffered from schizophrenia for most of her life, and still has ongoing major episodes of the illness. THE CENTER CANNOT HOLD is the eloquent, moving story of Elyn's life, from the first time that she heard voices speaking to her as a young teenager, to attempted suicides in college, through learning to live on her own as an adult in an often terrifying world. Saks discusses frankly the paranoia, the inability to tell imaginary fears from real ones, the voices in her head telling her to kill herself (and to harm others); as well the incredibly difficult obstacles she overcame to become a highly respected professional. This beautifully written memoir is destined to become a classic in its genre. The title is a line from "The Second Coming," a poem by William Butler Yeats, which is alluded to in the book.


The Key to Recovery from Mental Illness

A comprehensive and groundbreaking workbook addressing the stigma and distorted self-image issues experienced by those suffering with mental illness.

Families Caring for an Aging America

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation’s family caregivers provide the lion’s share of long-term care for our older adult population. They are also central to older adults’ access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Family Caregiving in Chronic Illness

Alzheimer's Disease, Cancer, Heart Disease, Mental Illness, and Stroke

This book provides a comprehensive analysis of family caregiving for adults who are dependent because of chronic illness. Focusing on five specific diseases - Alzheimer's, cancer, chronic mental illness, heart disease and stroke - the authors present and assess existing research and practice relating to family caregiving.

The Complete Caregiver Support Guide

A Reproducible Workbook for Groups and Individuals

Family members, and sometimes close friends, are often called upon to act as caregivers to ill or aged people they care about or for whom they are responsible. Although there are many rewarding outcomes of the time spent between the courageous and dedicated caregiver and the care-receiver*, the caregivers are usually unprepared, untrained and unsupported. The caregivers are also often isolated. These factors can put a huge amount of stress on non-professional or family caregivers.Attending a caregiver support group focusing on specific issues is of great benefit for caregivers. Such groups can include those facilitated by professionals such as social workers, counselors and group facilitators, and those facilitated by lay persons, often themselves caregivers. The intention of Caregiver Support is to provide content for support group facilitators and caregivers that touches on crucial topics. The reproducible handouts and worksheets are designed to provide insights, encourage problem-solving and develop the ability for caregivers to ask for the help they need to stay physically and emotionally healthy, allowing them to continue to be there for their care-receiver. While the book has an emphasis on caregiver support groups, the value of the handouts is the same for both groups and individuals. The individual seeking help in dealing with the stresses of their role as caregiver will find sections or individual handouts that speak to their most pressing needs. After working through them, individuals can discuss their insights with someone they can trust to give useful feedback, as well as family members who are willing to help in ways that will contribute to the caregiver's continued wellbeing.

Letters From Madelyn

Chronicles of a Caregiver

Madelyn Kubin was a 70-year-old Kansas farm wife. She appeared to be fragile because of her thinning white hair, macular degeneration, osteoporosis, congestive heart failure, and severe hearing loss. But when her husband Quentin suffered a debilitating stroke, she was forced to summon all of her physical, emotional, and spiritual strengths in order to care for him at home. Madelyn managed her isolation, loneliness, and stress by going to her computer, disengaging her emotional monitor, and writing letters to her daughter Elaine. Madelyn’s story of faith, courage, and love is told through her unflinchingly honest and surprisingly funny letters written in real time over the course of six-and-a-half years. Although she prayed every day that she would be a willing channel for God’s love and compassion, there were plenty of days she felt like telling God to go find himself another servant. Madelyn wrote unabashedly about her anger, guilt, depression, and grief. When Quentin displayed dementia-related inappropriate sexual behavior, Madelyn eventually learned how to handle it with grace and humor. She was an example of how it is possible, even in the very worst end-of-life situations, to experience mental and spiritual growth.

The Comfort of Home for Stroke

A Guide for Caregivers

This complete guide helps caregivers, family members, and stroke survivors understand the day-to-day issues faced by care providers. It guides readers through every stage of care, from explaining different kinds of strokes to understanding personality changes brought on by the illness. Other topics covered include how to prevent strokes from recurring, making the home safe and comfortable, returning to work after a stroke, and preventing caregiver burnout.

Caring for Our Own

Why There is No Political Demand for New American Social Welfare Rights

Caring for Our Own inverts an enduring question of social welfare politics. Rather than ask why the American state hasn't responded to unmet social welfare needs by expanding social entitlements, this book asks: Why don't American families view unmet social welfare needs as the basis for demands for new state entitlements? The answer, Sandra Levitsky argues, lies in a better understanding of how individuals imagine solutions to the social welfare problems they confront and what prevents new understandings of social welfare provision from developing into political demand for alternative social arrangements. Caring for Our Own considers the powerful ways in which existing social policies shape the political imagination, reinforcing longstanding values about family responsibility, subverting grievances grounded in notions of social responsibility, and in some rare cases, constructing new models of social provision that transcend existing ideological divisions in American social politics.

Bipolar Disorder

Alzheimer's Disease

A Family Information Handbook

Health, Wellness and Image

Mental Health Counselors

Single Moms Support

New Moms Support

Family Caregivers Support

Mental Health Advocacy

Mental Health Peer Support

Mental Health Education

Mental Health Recovery

Halton FASD Parent / Caregiver Support Group - No Physical Address

Peer support group for parents and caregivers of children, youths or adults living with Fetal Alcohol Spectrum Disorder.
* welcomes new members from Halton, Hamilton and the surrounding areas

Dundas Community Services - Community Education of Caregivers - Grafton Square

Peer support groups, education and training to assist family members, service providers and caregivers * sessions may include information such as advanced directives and senior safety

St. Joseph's Healthcare Hamilton - Developmental Dual Diagnosis Program - Level 1, Block D, Room D119 (inside Specialty Mental Health Clinic area)

A community-based mental health service that works with other organizations to form a coordinated network of services to meet the mental health needs of adults with intellectual disabilities. Services include assessment, treatment recommendations, and education and support to patients and caregivers.

Parents for Children's Mental Health - Family Support Group - Burlington Chapter

Peer to peer support group for parents of children and youth with mental health disorders/illnesses
* provide support, education, and empowerment by linking networks of families, communities, agencies and government

Parkinson Canada - Hamilton Support Group - Hamilton East

Provides mutual support and education on how to live well to individuals living with Parkinson's and their care partners

Joseph Brant Hospital - PACT for Halton - Joseph Brant Community Health Centre

A community outreach program, serving residents of Halton.
* also known as "Hospital without Walls," the program is organized as a mobile interdisciplinary team that provides round-the-clock clinical treatment, rehabilitative, and support services to individuals with a severe and persistent mental illness, in their homes

Services provided by PACT include:
* comprehensive case management with a rehabilitation focus
* crisis assessment and intervention
* symptom assessment and management
* administration and monitoring of medication
* activities of daily living
* social and leisure skills development
* supportive counselling
* education
* consultation
* support to caregivers

Joseph Brant Hospital - Wellness House Adult Day Program - Burlington - Wellness House - Itabashi Way

A community-based Adult Day and Caregiver Support Program affiliated with Joseph Brant Hospital.

Clients and caregivers are assessed by a program team:
* program provides functional therapy and support services to assist physically challenged adults, frail seniors and their caregivers
* qualified and experienced staff
* barrier free
* homelike
* programs include crafts, horticulture, floor games
* physical and occupational therapy
* larger group activities such as discussion groups
* therapeutic recreational activities

Major services
Adult Day Program:
* uses holistic day program model
* assist clients and caregivers to maximize and maintain abilities and compensate for limitations
* enable clients to remain living in their own homes for as long as they can
* reduce risks to health
* maintain quality of life

Halton Aphasia Program: (see separate listing here)
* Thursday afternoons at Wellness House from 1-4 pm
* Specialized Speech therapy in a group setting
* $45/month
* Must be a client of Wellness House to access Halton Aphasia Program

Caregiver Support Program:
* respite service for program clients, caregivers participate in individual and/or group sessions
* focus on maintaining their health and well-being

Transportation available to and from program:
* transit systems for the physically challenged
* program bus
* private transportation where available

Parkinson Canada - Oakville Support Group

The support group meets for mutual support, as well as to learn more about living with Parkinson's disease * for more information about the group, or to be connected with the current local volunteer contact for the support group, please contact Parkinson Canada office

Joseph Brant Hospital - Community Mental Health Outpatient Services - Burlington - Joseph Brant Community Health Centre (Brant Centre)

Community Mental Health provides a continuum of care from assessment or consultation, to specialized treatment supports for clients with complex and serious mental health disorders.

Child and Adolescent Clinic (CAP)
Provides support to children/youth under the age of 18 years.
* Child and Adolescent Psychiatrist works with Social Worker to assess and provide treatment recommendations on complex cases.

Concurrent Disorders Clinic (Addictions & Mental Illness)
Specialized assessments of clients with co-occurring mental health and addictions disorders.
* psychiatrists work with Social Worker to identify clients who would benefit from longer term individual treatment.
* clinic staff also provide "Health & Hope Group," a 10-week psycho-educational support group for people who experience difficulties with both a mental health issue and substance abuse issue.

Early Intervention in Psychosis (Phoenix)
Regional clinical program provides service to clients 14-40 years of age experiencing a first episode of psychosis.
* jointly managed by Joseph Brant Hospital, Oakville Trafalgar Memorial Hospital, North Halton Mental Health Clinic, ADAPT, and the Halton-Peel Schizophrenia Society.
* for more information, see separate listing here

General Psychiatrist Consultation Clinic
Assessment, medication review, and treatment recommendations via a "shared care" model with family physicians.
* follow up appointments provided as necessary for more complex cases to ensure the efficacy of medications prescribed and that the recommended treatment plan is working for the client.

Geriatric Psychiatric Consultation Service
Supports clients aged 65 and older who are residents of Burlington, for more details see separate listing here

Halton Homes (homelessness service)
Provides clinical support to Halton Homes service which targets mental health clients at risk of being homeless and provides both clinical case management and housing supports.
* Ontario Ministry of Health supportive housing initiative, lead agency is Summit Housing and Outreach Program.
* for more information see separate listings here

PACT (Program of Assertive Community Treatment)
Community outreach program of Halton Region, is housed at Joseph Brant serving all Halton residents, see separate listing here

PHAST (Prioritizing Health through Acute Stabilization and Treatment)
Access to mental health and addiction services for individuals 16 and older with mental health and/or addiction concerns who have an urgent need for acute stabilization and intervention
* multidisciplinary model, which includes the services of a registered nurse, addictions specialists, social workers, a child and youth intensive worker, a peer support worker, an occupational therapist, a transitional age youth social worker, a case manager and clerical support
* treatment includes stabilization and referral to social service agency partners through a combination of group and one-on-one sessions for individuals and their families

Treatment Services
Available through referral from a physician:
1. Short Term Treatment
Meets the needs of individuals who are experiencing mental health issues such as mood or anxiety disorders.
* assessment, psychiatric evaluation, treatment planning, skill development and coordination of community resources.
* an average of 12 therapy sessions is offered.
* clinicians also offer treatment via several groups, e.g. Cognitive Behavioural Therapy (CBT) for clients with depression or anxiety.

2. Intensive Case Management
Inter-professional team offers comprehensive outreach services to adult clients and their families.
* addresses the multiple needs of clients with predominantly psychotic or severe mood disorders (eg. bipolar) and focuses on the client's goals and effective community reintegration.

3. Medication Clinic
Operates with both RN and Psychiatrist support for the follow up of primarily a chronic population.
* goals are to facilitate the optimal use of psychotropic medications with a view to prevent/reduce hospitalizations and Emergency Department visits, ensure client stability in the community and support clients in maintaining adequate functioning and an enhanced quality of life.

Recovery Canada - Burlington Groups - No Physical Address

Major Services:
* weekly group meetings to support those with anxiety, depression and low self-esteem, open to the public and visitors to join and observe
* monthly leaders training for interested members who have attended Recovery Canada groups for at least six months

Website includes more information on the Recovery method as well as information on the meeting places, telephone meetings, chat rooms, and online meetings (see here)

Brain Tumour Foundation of Canada - Adult Brain Tumour Support Group - Burlington

Help survivors, family and caregivers through their journey with a brain tumour by providing connections with others who have faced life with a brain tumour thereby offering reassurance, reducing feelings of isolation and reinforcing a positive, hopeful attitude, and by sharing practical information to:
* help make informed decisions about brain tumour treatment options
* learn about relevant community resources
* enhance coping skills in order to reduce anxiety, feelings of loss of control and fear of the unknown
* talk to others about changes in family roles and the financial strain that can come as a result of a brain tumour diagnosis

Alzheimer Society of Brant, Haldimand Norfolk, Hamilton Halton - Family Support Groups - Hamilton Mountain East - 1575 Upper Ottawa St

A series of group-format support programs that help family, caregivers, and individuals with memory loss cope with progressive cognitive deficits, dementia, or Alzheimer's disease. Different groups are offered that focus on topics like coping with responsive behaviours, understanding specific diseases, caring for a parent, grief and loss, and long-term care.